Best Appt. Ever!

Olivia had her best pulmonary appointment ever yesterday! Her doctor had talked with her geneticist about her growth because he was concerned that reducing or removing her oxygen would interfere with her growth. Her geneticist thought that the only way to tell would be to try her without her oxygen for a couple of months. Her doctor and I were afraid that if we did that and then she needed to go back on it would be brutal to put her back on. So we decided that she’s doing well enough that we are going to start going to appointments every two months instead of every month. When the dietician came in she was very happy that Olivia had gained almost a pound since her appointment last month. Next came the respiratory therapist. They always check her O2 sats on her oxygen and off her oxygen. Olivia maintained 98% without oxygen for 15-20 minutes! She’s never been that high before!! The doctor stopped back in before we left and said that since her sats were that good we should turn her down from 0.3 to 0.2 and see how she does with that between now and November. YAY Olivia!

Here's some new pics of our little cutie!

Yippee! Yahoo!

They sent us home this morning! Olivia had a great night. She was on slightly lower oxygen than normal, and did better than normal! They sent us home on her normal oxygen though. She already wanted to play outside when we got home this morning!

Surgery Update

Surgery went really well. We are settled in our room in the PICU and Olivia is napping with Joe. She is really crabby, but is at her normal oxygen with oxygen saturations better than normal. YAY!!! I have to go now though because they just said we have to move to the hall because there is a tornado warning. We'll keep you posted!

Surgery Tomorrow

Sorry it's been so long again! Olivia will be having her tonsils and adenoids removed tomorrow. She will be staying in the PICU at least one night after. We'll keep everyone posted as best we can.